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Registry for Families
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Parent/Guardian
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First Name:
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Last Name:
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Address
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City
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State
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Zip Code
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Country
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Home Phone
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Work Phone
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E-Mail Address
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Affected Children:
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First Name:
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Birth Date:
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Names of Siblings:
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Brothers
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Sisters
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Health Care Provider
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First Name:
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Last Name:
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Hospital, Clinic or University
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Address
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City
,
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State
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Zip Code
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Country
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Work Phone
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Fax
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E-Mail Address
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Diagnosis:
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Tyrosine Hydroxylase Deficiency
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Aromatic L-Amino Acid Decarboxylase Deficiency
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GTP Cyclohydrolase I Deficiency
(Dopa Responsive Dystonia)
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Succinic Semialdehyde Dehydrogenase Deficiency(SSADH)
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Undiagnosed
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Description of child's medical condition, treatment and medication:
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Permission Requests
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Yes No
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Would you like to be included in our parent-to-parent network?
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Can we provide your information to medical professionals?
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Can we provide your information to other families?
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Would you be interested in volunteering time to help our organization?
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