Board of Directors and Family Disease Representatives
Unknown Biogenic Defects
USA Family Disease Representatives
Nancy and John Speller
Founder/President PND
Board Member
6 Nathan Drive
Plainview, New York 11803 USA
Phone and Fax (516) 937-0049
[email protected]
Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)
USA Family Disease Representatives
Brad and Carolyn Hoffman
Founders/Co-Vice Presidents
Board Members
498 Lillian Court
Delafield, Wisconsin 53018 USA
Phone (262) 646-5133
[email protected]
Rick and Joann Staubs
Board Members
Winchester, Virgina
[email protected]
Mike and Diane Casey
Davis, California
[email protected]
International Family Disease Representative
Tim and Joanne Hall
Liverpool, England
[email protected]
Aromatic L- Amino Acid Decarboxylase Deficiency (ALADD)
USA Family Disease Representatives
Bruce and Kelly Heger
Board Members
302 Plain Street
Bridge Water, MA 02324
Phone (508) 697-8026
[email protected]
International Family Disease Representative
Lisa Flint
Croydon, England
[email protected]
Tyrosine Hydroxylase Deficiency (TH Deficiency)
USA Family Disease Representatives
Liz Mckinnon
Secretary
Board Member
5334 Annandale Court
Westerville, OH 43082
Phone (614) 895-6947
Fax (614) 891-9934
[email protected]
Charlie and Stacey Cargill
Board Members
San Antonio, Texas
[email protected]
LeRee Ahlers
Belgrade, Nebraska
[email protected]
Darlene Drew
Family Online support Group Moderator
[email protected]
GTPI Cyclohydrolase Deficiency
USA Family Disease Representatives
Mark Colgrove
[email protected]
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